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Updated: Sep 27 2020

Thalassemia Anemia

  • Snapshot
    • A 22-year-old Vietnamese woman presents for a routine gyn exam. Her menstrual cycle is normal, and there is no evidence of other bleeding. Guaiac is negative. Her hemoglobin is at 11 (12-16), RBC is 5.8 (3.5-5.5), and an MCV of 70 (80-100) with a normal RDW of 10. WBC and platelets are normal. Hemoglobin electrophoresis shows an increase in the amount of Hgb A2, and Hgb F.
  • Introduction
    • Autosomal recessive disease caused by decreased production of hemoglobin
      • may involve mutations in α (α-thalassemia) or β (β-thalassemia) globin gene
    • There are 4 α genes (2 on each chromosome) and 2 β genes that make up three forms of Hgb
      • Hgb A
        • subunits: α,α,β,β
        • 96-98% of adult hemoglobin
      • Hgb A2
        • subunits: α,α,δ,δ
        • present in trace amounts in adults.
      • Hgb F
        • subunits: α,α,γ,γ
        • declines in the first year of life
        • cannot bind 2,3 DPG so has a left-shifted curve
    • α-thalassemia types
      • 1 gene deletion is asymptomatic
      • 2 gene deletion is associated with a mild anemia with RBC hyperplasia
        • called α-thalassemia trait
        • seen in Asians and Africans
          • Asians more commonly have a deletion of two α genes on 1 chromosome (cis deletion)
          • Africans more commonly have a deletion of 1 α gene from each chromosome (trans deletion)
      • 3 gene deletion is associated with severe anemia
      • 4 gene deletion is not compatible with life
        • will cause hydrops fetalis
    • β-thalassemia types
      • 1 gene involvement
        • called β-thalassemia minor
        • chain may be truncated (β+) or deleted (β0)
        • β/β+ is the most benign form
        • may be caused by mutation in Kozak consensus sequence
      • 2 gene involvement
        • called β-thalassemia major
        • β0/β0 is the most severe form
        • α,α,α,α hemoglobin present
  • Presentation
    • Symptoms
      • α-thalassemia
        • mild anemia in 2 gene deletion
        • severe anemia in 3 gene deletion
          • symptoms being at birth
      • β-thalassemia
        • minor form
          • largely asymptomatic
        • intermedia form
          • hypochromic, microcytic anemia
        • major form
          • severe anemia
          • symptoms begin after several months of life due to initial presence of HbF
          • chipmunk facies
            • secondary to extramedullary hematopoiesis in the skull
    • Physical exam
      • β-thalassemia
        • major form
          • hepatosplenomegaly due to chronic hemolysis, additionally exacerbated by extramedullary hematopoiesis in these organs
  • Evaluation
    • Peripheral smear
      • 3 gene deletion α-thalassemia
        • target, hypochromic, microcytic cells, with Heinz bodies from HbH
      • β-thalassemia minor
        • target, hypochromic, microcytic cells
      • β-thalassemia major
        • nucleated RBCs
        • target, hypochromic, microcytic cells
    • Hemoglobin gel-electrophoresis
      • α-thalassemia trait
        • normal
      • 3 gene deletion α-thalassemia
        • HbH (β,β,β,β)
      • 4 gene deletion α-thalassemia
        • Hb Barts (γ,γ,γ,γ)
      • β-thalassemia minor
        • ↑ HbA2, HbF
        • ↓ HbA
      • β-thalassemia major
        • ↑ HbA2, HbF
        • no HbA
    • Imaging
      • β-thalassemia major
        • hair-on-end/crew cut appearance of the skull
          • secondary to extramedullary hematopoiesis in the skull
  • Treatment
    • β-thalassemia major
      • frequent transfusions required
        • can cause iron overload and hemochromatosis
  • Prognosis, Prevention, and Complications
    • β-thalassemia major
      • ↑ risk of B19-mediated aplastic crises
    • Thalassemia trait
      • protects against malaria
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